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Author Topic: Does Anyone Have Celiac Disease?  (Read 1801 times)

High On Octane

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Does Anyone Have Celiac Disease?
« on: December 27, 2013, 10:22:53 PM »
So, I haven't felt worth a shit in probably 5 years or more.  The last 8 months I've had constant nausea and diarrhea and all kinds of other fun symptoms and have lost 35 pounds since (and I've never been a big guy).  About 6 weeks ago I was just so sick that I went to the ER, they recommended me to a gastro specialist.  Saw them and finally got in for my colonoscopy and endoscopy today.  (Ever prep for one?  That's a fun day/night you'll never forget.)  For the most part things were normal, but there were a few abnormalities.  They ended up taking 6 biopsies and removed a 3mm polyp.  Now because of all my symptoms and the what they found today, or lack there of, the doctor thinks I may have celiac disease (basically gluten intolerance deficiency).  But obviously, I won't know for sure until the biopsy results come back in 5-7 days.

So, I did what every man with a computer would do and got home and researched it.  It actually makes sense, this celiac disease.  I eat a lot of pastas and breads and drink LOTS of beer, which are the WORST things to consume with this disease.  I actually haven't drank hardly any beer for the last 3 weeks because I was getting to the point that half way thru my 2nd beer it'd come back up.   :(   But, all my symptoms match right up, including symptoms I didn't even realize were relevant.  Like my chronic back pain, and this new symptom that started about 4 months ago where my hands are constantly weak and occasionally go numb, like when you fall asleep wrong and wake up with a "sleeping" limb.  It's weird, I've been dropping shit left and right because I think I'm holding onto to something and then when I pick it up it just falls to the floor.  Not a good thing when I work cars all day and my bikes in my spare time.

Anyways, I'm just nervous about the results. I have been for the last month.  And now that the doctor brought up a whole new disease I've never heard of and I MAY have to give up all the things I love to eat and drink I'm pretty bummed out.  What bums me out the most is KARMA!  I've been talking shit for so many years about people being gluten-free, thinking it was just the new health fad.  Only to find out, like a cruel ironic life changing joke, I may have to live the rest of my life gluten-free.  I'm actually considering starting the new diet now just in case, because I need to start feeling better, like 4 years ago.

If any of you suffer from this or just want to give me words of encouragement, it'd be appreciated.  Thanks.

Scottie
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ace.cafe

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Re: Does Anyone Have Celiac Disease?
« Reply #1 on: December 27, 2013, 10:39:16 PM »
I don't have it, but I have cut out a lot of that kind of stuff for about a year now, and I have lost a lot of excess weight and feel a whole lot better.
I hope everything works out okay for you.
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Arizoni

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Re: Does Anyone Have Celiac Disease?
« Reply #2 on: December 27, 2013, 11:24:31 PM »
Count your blessings Scottie.
Usually whenever someone looks up some sort of illness they end up reading things like "incurable", "intense pain" and "fatal".  Then after seeing a doctor that actually knows what the real answer is they find that with a few minor changes in their lifestyle and maybe a pill a day and they're fine.
Jim
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AgentX

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Re: Does Anyone Have Celiac Disease?
« Reply #3 on: December 28, 2013, 12:02:43 AM »
My wife has it, diagnosed in her late 20s so she had to make a lot of big changes.  You learn to find quality substitutes...don't immediately assume any paeticular thing that is gluten free is the best you will ever find.

If it turns out you have it, get in touch and I will make some recommendations...

Chuck D

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Re: Does Anyone Have Celiac Disease?
« Reply #4 on: December 28, 2013, 12:04:17 AM »
So, I haven't felt worth a shit in probably 5 years or more.  The last 8 months I've had constant nausea and diarrhea and all kinds of other fun symptoms and have lost 35 pounds since (and I've never been a big guy).  About 6 weeks ago I was just so sick that I went to the ER, they recommended me to a gastro specialist.  Saw them and finally got in for my colonoscopy and endoscopy today.  (Ever prep for one?  That's a fun day/night you'll never forget.)  For the most part things were normal, but there were a few abnormalities.  They ended up taking 6 biopsies and removed a 3mm polyp.  Now because of all my symptoms and the what they found today, or lack there of, the doctor thinks I may have celiac disease (basically gluten intolerance deficiency).  But obviously, I won't know for sure until the biopsy results come back in 5-7 days.

So, I did what every man with a computer would do and got home and researched it.  It actually makes sense, this celiac disease.  I eat a lot of pastas and breads and drink LOTS of beer, which are the WORST things to consume with this disease.  I actually haven't drank hardly any beer for the last 3 weeks because I was getting to the point that half way thru my 2nd beer it'd come back up.   :(   But, all my symptoms match right up, including symptoms I didn't even realize were relevant.  Like my chronic back pain, and this new symptom that started about 4 months ago where my hands are constantly weak and occasionally go numb, like when you fall asleep wrong and wake up with a "sleeping" limb.  It's weird, I've been dropping shit left and right because I think I'm holding onto to something and then when I pick it up it just falls to the floor.  Not a good thing when I work cars all day and my bikes in my spare time.

Anyways, I'm just nervous about the results. I have been for the last month.  And now that the doctor brought up a whole new disease I've never heard of and I MAY have to give up all the things I love to eat and drink I'm pretty bummed out.  What bums me out the most is KARMA!  I've been talking shit for so many years about people being gluten-free, thinking it was just the new health fad.  Only to find out, like a cruel ironic life changing joke, I may have to live the rest of my life gluten-free.  I'm actually considering starting the new diet now just in case, because I need to start feeling better, like 4 years ago.

If any of you suffer from this or just want to give me words of encouragement, it'd be appreciated.  Thanks.

Scottie

Hi Scottie,
Several years ago a buddy from work ( name is Tom) was diagnosed with Celiac's which as he explained it is an allergy to "gluten", the protein found in wheat and wheat products such as most commercially prepared breads and pastas for example. I recall him saying that the reaction involves the damage of receptors located in the stomach lining and intestine, resulting in the malabsorption of nutrients and severe nutrient deficiencies. Toms symptoms of chronic fatigue and weight loss had come on in the year prior to my meeting him and by that time he looked as if he couldn't open a pickle jar let alone do roadway repair. Long story short he got checked out and the verdict was Celiac's disease which is by no means a death sentence. He became a "gluten-free" maniac which is easier to do than you might think. Today (17 years later), Tom's as healthy (and big) as a horse. Just do your research on what to avoid and you'll probably notice that most good supermarkets cater to the gluten-free crowd of which you're now a proud member.
This condition seems pretty well understood so if you follow the guidelines you should have your health back in no time. Good luck.
Chuck.
« Last Edit: December 28, 2013, 12:06:33 AM by Chuck D »
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Re: Does Anyone Have Celiac Disease?
« Reply #5 on: December 28, 2013, 12:21:35 AM »
i am newly convinced that their is a conspiracy to get many of us to the grave sooner rather than later. two things this may serve maybe more. one the government makes money on the doctors that get rich and have to pay higher taxes to the government. two no payout of retirements or pensions. possible three a crude form of population control.
i digress. i was the only one in all my family that lost weight over the holiday. i lost 22 pounds and changed belt size from a 44 to a 40. i could buy tighter pants but i am still losing weight. all that and i did not run or jog or walk or lift weights or do any kind of exercise. what did i do you might ask? i watched a free video. no pills no gimmicks no credit cards. seems that a pediatric doctor needed to satisfy questions he had about childhood obesity and diabetes along with many other childhood diseases that are affecting our youngest among us.
his research just kept coming back to sugar! sugar and high fructose corn syrup and honey and molasses and juice drinks and and and...
you have to watch it and listen to believe it. his first major discovery is outlined in a video called " sugar the bitter truth  ". 89 minutes long i have now watched it three times . he has a followup video related to the first called " fat chance " the video is free but he has published a book in that name and it has made it to the new york times best sellers list.  i might buy it.
i learned more after listening to this doctor.  do a google search for jadeinstitute and the words bone soup . or as our grandmothers used to make us chicken soup. jade institute has a 10 paragraph article about how we are collagen deficient. collagen is for the hair, nails, skin these are the obvious but the non obvious is the stomach lining the intestines the colon the joints of our body and many more things. i now slow cook chicken or beef bones in my crock pot twice a week and store in freezer for daily use.
our fda food pyramid is wrong and i found a site that has what ellis calls a food thermometer. read all about it here http://www.rajeun.net/carbotherm.html
best of luck in your quest for better health.

Mr.Mazza

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Re: Does Anyone Have Celiac Disease?
« Reply #6 on: December 28, 2013, 01:55:46 AM »
For a few months I was trailed to see if I was a Celiac, turns out I wasn't. But I discovered lot's of foods that tasted pretty good but were gluten free, like cereals, breads, pastas ect.

It may be a pain but good luck sir Scottie!
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High On Octane

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Re: Does Anyone Have Celiac Disease?
« Reply #7 on: December 28, 2013, 02:13:44 AM »
Thanks for your responses, it's good to know that it's not as uncommon as I thought.  I'm just stressing out about everything, work, bills and money mostly, and overwhelmed which doesn't help matters.  I guess what threw me off was that I've been sick as hell, throwing up 2-5 times a week sick, and there was no sign of an ulcer or ulcerative colitis.  So obviously something is going on, and now I have to wait a week or more to find out what.   :(

Scottie
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boggy

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Re: Does Anyone Have Celiac Disease?
« Reply #8 on: December 28, 2013, 02:17:40 AM »
My good friend has been making the adjustment to gluten free for over a year do to celiac disease.

My outsider perspective is you will discover it's a pain in the ass at first, especially when you go out to eat.  However, so many places are wise to this and already have you covered with gluten free options.  I feel like that is less of a pain in the ass than what you go through when you actually have the symptoms.  You just have to figure out what's best and what substitutes are actually going to be good eat rather than sacrificing. 

Better knowing and fixing than suffering through a mystery.  Good luck buddy, and hang in there.   

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Mr.Mazza

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Re: Does Anyone Have Celiac Disease?
« Reply #9 on: December 28, 2013, 03:01:15 AM »
Thanks for your responses, it's good to know that it's not as uncommon as I thought.  I'm just stressing out about everything, work, bills and money mostly, and overwhelmed which doesn't help matters.  I guess what threw me off was that I've been sick as hell, throwing up 2-5 times a week sick, and there was no sign of an ulcer or ulcerative colitis.  So obviously something is going on, and now I have to wait a week or more to find out what.   :(

Scottie

I had that when I became Lactose Intolerant (Moderately, I can have chocolate and cheese but straight milk messes me up) I just suddenly was always feeling really sick, after a month of basically staying home with no fever or high temp, I ended up getting a bunch of tests (Including an Ultrasound, which...tickles)

It is quite a pain, but once you found a the ways around the bigger things, it becomes natural.
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Re: Does Anyone Have Celiac Disease?
« Reply #10 on: December 28, 2013, 05:13:52 AM »
Maybe I should have mentioned that telling folks about your illness is just about as bad as looking up symptoms and illnesses on the web.  All sorts of possible problems will come out of the woodwork for you to worry about.

For instance, your mentioning your nausea.
For a couple of years I would sometimes develop this problem.  Sometimes several times a day.  Sometimes, not for several weeks.
It turned out to be an infected and plugged up gall bladder.  No pain.  Just sometimes I would feel like hell and then start barfing.
The doctors finally found the problem when I suddenly got so sick I had to go to the ER.

I guess what I'm saying is let your doctor do some tests and go with what he decides unless it involves chopping on your body.   If it comes to that, get a new doctor and see if he comes up with the same answer.
Jim
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TWinOKC

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Re: Does Anyone Have Celiac Disease?
« Reply #11 on: December 28, 2013, 05:56:36 AM »
Hi Scottie,

I have never heard of celiac disease but it sounds to me like you are getting some sound advise from your doctors.  Go along with their tests Non Destructive Inspection testing is the way to go, if they come at you with a knife, run as fast as you can.

Be patient, they will get to the bottom of your problem.

Best wishes,

Terry
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Re: Does Anyone Have Celiac Disease?
« Reply #12 on: December 28, 2013, 02:01:10 PM »
Scottie my wife has a gluten problem, you'll just have to give up eating a lot of good shit and buy expensive no gluten products. It's not going to kill you, just's a pain in the ass. Eat the wrong stuff and feel lousy.  ERC
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High On Octane

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Re: Does Anyone Have Celiac Disease?
« Reply #13 on: December 28, 2013, 02:59:26 PM »
I feel a little less stressed out today.  Hopefully it is celiac disease that I have, that would be a good thing.  Because all I have to do to feel better is change my diet.  If I have Chrones disease like they originally thought I'll be stuck taking expensive medication for the rest of my life.  And honestly, gluten is the only thing that I never tried cutting out of my diet.  I stopped smoking, stopped drinking, stopped eating spicy food, stopped eating fast food, all kinds of stuff, and just never felt any better.  And like I said in my first post, it's probably Karma for me making fun of people who are Gluten free.  I'm ignorant at times.  Oh well, what do you do?

Scottie
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Re: Does Anyone Have Celiac Disease?
« Reply #14 on: December 28, 2013, 03:00:38 PM »
Good luck with it Scottie . I know nuthin.  But you got best wishes bud.
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